100 Questions & Answers About Vascular Anomalies

100 Questions & Answers About Vascular Anomalies

Description

Vascular anomalies as a whole are rare disorders and finding comprehensive, reliable information about them can be difficult. If you or a loved one is suffering from a vascular anomaly, 100 Questions & Answers About Vascular Anomalies provides the guidance and advice you need. Co-written by a world-recognized physician who has dedicated her career to patients with vascular anomalies, and a medical librarian and patient who has experienced the challenges of being diagnosed with a vascular anomaly, this book gives you authoritative answers to the most often asked questions by patients and families. It incorporates information about resources for networking, disease-specific foundations, psychosocial issues, and more. This is an invaluable guide for anyone coping with the physical and emotional turmoil of a vascular anomaly.

Table of contents

Title......Page 10
Copyright......Page 11
Contents......Page 12
Preface......Page 14
Part One: The Basics......Page 16
2. What is the role and function of arteries, veins, and capillaries?......Page 17
3. What is the lymphatic system?......Page 19
4. What are the key components of blood and lymphatics?......Page 20
5. What are endothelial cells?......Page 21
6. What is a vascular anomaly?......Page 23
8. What causes vascular anomalies?......Page 27
10. What is the history of the field of vascular anomalies?......Page 29
11. How do I find a qualified doctor to diagnose and evaluate a vascular anomaly?......Page 30
12. How does working with a multidisciplinary team of specialists help in the diagnosis of vascular anomalies?......Page 31
14. How do I know if the physician performing my treatment procedure is properly qualified?......Page 32
15. Should we get a second opinion?......Page 34
16. What are some of the key tests used to identify, diagnose, and classify vascular anomalies?......Page 35
17. When is an ultrasound helpful?......Page 37
19. How is a computed tomography (CT) scan used?......Page 38
Part Two: Vascular Malformations......Page 40
20. What is a vascular malformation?......Page 41
23. What are PTEN-associated vascular malformations?......Page 43
24. Are vascular malformations painful?......Page 46
26. What are some of the syndromes related to vascular malformations?......Page 47
27. How does an angiogram help diagnose vascular malformations?......Page 55
28. What are some treatments for vascular malformations?......Page 56
30. Are there complications that can occur from treatment?......Page 57
31. What blood tests might be performed for patients with vascular malformations?......Page 58
32. Are vascular malformations inherited, and do genetics play a role?......Page 61
35. Can there be vascular malformations in the brain?......Page 63
37. What risks are associated with anesthesia, especially for children?......Page 66
38. When can blood clots form in a vascular malformation?......Page 67
40. Can a woman become pregnant and support a pregnancy when she has a vascular malformation?......Page 68
41. What are some medications used to treat patients with vascular malformations?......Page 69
42. What are the risks of not having a vascular malformation treated?......Page 70
Part Three: Facts About Hemangiomas......Page 72
44. What are some of the different kinds of hemangiomas?......Page 73
45. What is hemangiomatosis?......Page 74
48. Are hemangiomas inherited, and do genetics play a role?......Page 75
50. If my child has a hemangioma, does that mean there are hemangiomas in other locations?......Page 76
52. What is a RICH?......Page 77
53. Do RICH-type hemangiomas cause any problems?......Page 78
55. I heard about GLUT-1 as a marker for hemangiomas. What is this?......Page 79
56. Why is observation the preferred treatment for some hemangiomas?......Page 80
57. What are red flags I should be concerned about?......Page 81
59. What are some of the possible side effects of corticosteroids, especially among young children? Can my child attend day care while he or she is taking corticosteroids?......Page 82
60. What is interferon alfa-2a or interferon alfa-2b?......Page 84
61. How is laser therapy used to treat complicated hemangiomas?......Page 86
63. What is propranolol, and how is it used for treatment?......Page 87
64. What is vincristine, and how is it used for treatment?......Page 89
66. What should someone do if they are exposed to chickenpox during steroid treatment?......Page 90
68. How are ulcerated hemangiomas treated?......Page 91
69. The doctor wants to evaluate my child for PHACES. What is that?......Page 93
70. Why is it so important to screen patients for PHACES?......Page 94
71. How are patients screened for PHACES?......Page 95
72. The doctor says my child has kaposiform hemangioendothelioma (KHE). What is this?......Page 96
73. My child has a liver hemangioma. Should I worry?......Page 98
Part Four: Lymphatic Malformations......Page 100
74. What is a lymphatic malformation?......Page 101
75. What are some of the major types of lymphatic malformations?......Page 102
76. What is lymphedema?......Page 103
77. Ive heard of lymphatic drainage massage therapy. Do you recommend it?......Page 106
78. What precautions should I be aware of regarding lymphatic malformations?......Page 107
79. Why are compression devices recommended, and how do they work?......Page 108
80. When is sclerotherapy used to treat lymphatic malformations, how does it work, and what are the complications?......Page 109
81. What are some of the syndromes associated with lymphatic malformations?......Page 110
Part Five: Living with Vascular Anomalies......Page 114
82. Where we live there are no specialists familiar with complicated vascular lesions. What should we do?......Page 115
83. Insurance does not cover procedures that are recommended for our child. What can we do?......Page 116
84. Everywhere we go people stare and make comments. What can we say?......Page 118
85. What support is available to families?......Page 120
86. Should my childs condition affect my parenting?......Page 121
87. Do you have suggestions for how to balance the needs of our other children?......Page 122
88. Is it common for parents to be depressed?......Page 124
90. Should an adult or child avoid certain sports or activities?......Page 126
92. Is there anything I did to cause this?......Page 127
93. The number of physicians and tests is overwhelming. How can I keep everything straight? How do I manage taking off from work for all of my childs necessary appointments?......Page 129
94. How do you recommend discussing complicated medical and psychosocial issues with young children?......Page 130
96. The medication prescribed for my child is not approved by the FDA for this disorder. Should I be worried? What about generic drugsare they okay?......Page 133
98. Should we be concerned about the issues related to reconstructive/plastic surgery in children?......Page 134
99. What are some emergencies seen in patients with vascular anomalies?......Page 135
100. Where can I find more information on vascular anomalies?......Page 136
Appendix......Page 138
Glossary......Page 144
Index......Page 150

Details

  • Author: Francine Blei, Carlita Anglin
  • Edition: 1
  • Publication Date: 2010
  • Publisher: Jones & Bartlett Publishers
  • ISBN-10: 0763766593
  • ISBN-13: 9780763766597
  • Pages: 157
  • Format: pdf
  • Size: 1.2M
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